I wanted to share a sneak peek of some photos of Maddie that were taken last week. Click here and scroll down a little to see the pictures of Miss Maddie-boo. Angela Shea, an incredibly nice person and fabulous photographer, contacted me a few months ago to say that she would like to give us the “gift of photography.” She takes time out of her busy schedule to donate her time and talent to take photos for people with children who are going through alot. Below the pics of Maddie on her blog are those of others to whom she has given this same gift, a few of them from our oncology clinic. We are so appreciative of her time and cannot wait to see the rest of the pictures.
I had put off scheduling it because there never seemed to be a perfect time. I was hoping to get control of the seizures, let Maddie lose her steroid weight, grow her hair……I finally realized that the perfect time may never come and my beautiful child is 2 and a half years old and I have never had professional pictures taken of her (what kind of mother am I?) So, knowing she would probably feel like poo for the next few months because of the steroids (and that she would balloon up too) we decided we were ready. And Angela was so sweet to work with our schedule.
I had been waiting to share them because I was trying to keep them a surprise for my husband. I was saving it for Father’s Day. But I can’t keep things from him very long, and so when we were both feeling a little down after starting the ACTH and not seeing any results, I went ahead and showed him to try to brighten his day.
One last thing, for those of you that pray, please pray that the ACTH is working for Maddie. She is not seizure free yet, but we have seen some improvement in the last two days. I will be increasing her dose tomorrow and am desperately hoping that it will be just what she needs to knock these horrible seizures out so that she can begin to develop again.
Love to everyone,
Liz, Brandon, and Maddie