End of ’08 – April ’09 Photos

Since the development of the seizure disorder, I have taken significantly fewer pictures. This is partially because she has felt really bad, and partly because flash photography sometimes brings on head drop seizures in her. I have been hesitant to share these pics because throughout much of the time, she is on steroids, and she does not look like “our Maddie.” Maddie also seems not to enjoy having her picture taken anymore; she does not want to pose like she used to and often only makes silly faces once I pull out the camera now.

It has been particularly painful to look back at pictures of how well she was doing developmentally, how well she played and how happy she was before the seizures. I have just not wanted to face those things because it is so sad to realize how much Infantile Spasms has taken from Maddie.

The eye rolling episodes that were the precursors to her seizures started on December 29, 2008. By the second week of January, she was barely awake enough to play because she was having them so often. Her eye rolling turned into much stronger seizures on Feb 7, 2009. The diagnosis of Infantile Spasms was made on Feb 19, 2009 and we immediately started the high dose steroids. The pictures below are some of the few I have taken since the onset of seizures. Note the fact that our princess finally has some hair!

New Years Eve 2008

New Years Eve 2008

Bathtime January 1 2009

Bathtime January 1 2009

Jan 24

Jan 24

I love my Dada - Feb 8

I love my DaDa - Feb 8

The new face I make when Mama tells me to smile

The new face I make when Mama tells me to smile

Playing in the yard in my jammies - Feb 8

Playing in the yard in my jammies - Feb 8

I am sooo big - Feb 8

I am sooo big - Feb 8

Throwing balls, my favorite game - Feb 10

Throwing balls, my favorite game - Feb 10

My first time out in the snow - March 3

My first time out in the snow - March 3

Again, my silly smile - March 2

Again, my silly smile - March 2

The day after we came home from the hospital - April 12

The day after we came home from the hospital with sepsis - April 12

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17 thoughts on “End of ’08 – April ’09 Photos

  1. Pingback: New photos « Maddie’s Marathon Against Leukemia

  2. Maddie is so very very beautiful. Love the hair and as always that smile. We love you Maddie and pray for you and your Mom and Dad all the time.

  3. Oh my!!! She is as gorgeous as ever!!! I am so happy you posted some updated pics as I miss seeing her in clinic! I hope you don’t mind if I added a link to this blog on our new site. I, too have moved ffrom Caringbridge and would love to share Maddie’s Mommy’s incredible strength and resolve!
    Love,
    Kathy
    http://www.strawberryseeds.net

  4. Maddie is and always has been adorable with a beautiful smile.. Even her new smile is precious and shows her personality. I can’t believe how much hair she has now. Thanks so much for updating the photos. All of you are always in our prayers.
    Love
    Loretta

  5. Liz,
    I am a friend of Shawn’s and keep up with you and your precious daughter on this great website. Just wanted to tell you how BEAUTIFUL Miss Maddie is! The new hair is wonderful, as is her smile. Thanks so much for sharing…she is just amazing!

  6. I don’t know of all of you personally, just from friends and now extended family. I am humbled by the amazing trek your family has been on of late. I pray for all of you to come through this with a smiling vivacious daughter who will be around daily to remind all of us how precious life truly is.
    Thank you for sharing Maddie’s “Incredible Journey” with all of us.
    Cindy Shoemaker

  7. Maddie is such an example of God’s never-ending care! She is beautiful and I love the “kissing” photo with her dad … I pray for her (and you) each day .. it is a privilege. Thank you for your sharing these photos.

  8. Thanks for sharing! She is precious. I am inspired by Maddie (and her parents) daily! Be well.
    With prayers for healing and peace,
    Lori

  9. Beautiful, full of life pictures! Maddie is the best of both Mom and Dad! Praying for all of you! L…Carol

  10. Oh what a precious little girl. Liz, I’m looking for some of you, but I sure do see a whole lot of her Daddy in her!!! I hope and pray everyday that her life will get better. I’ve been so impressed how you have been so positive and brave throughout this terrible nightmare. I hope today will be a good one for all of you.
    Love,
    Susan

  11. Hey Liz! Just checking on you guys! Maddie is beautiful as always! She looks like she favors her dad. Like the others have said–YEAH FOR THE HAIR!! Please know that her beautiful smile says so much about her strength and inspires all of us to smile too! I hope she is doing better. Please know that you are in our hearts as we pray for you! Stay strong!
    Bec

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