I just wanted to let everyone know that our appointment today at UNC went well. The doctors spent over 3 hours on our appointment and we were very pleased with how thorough they were. They were not able to conclusively say they are seizures, but they are reviewing the earlier EEG to see what they can find. They feel what they saw on video and what we described looks like a seizure. If they are seizures, they are most likely coming from a part of the brain that is not easily detectable by EEG. We may still have to repeat the EEG, but we will cross our fingers that they can find what they need on the one she had done here. Either way, they feel the activity is so seizure-like that we are going to try a new medication to treat seizures. We hope that this one does more than the one she is on now.
Thanks so much for all the prayers and well wishes. I will update more later.
Love to everyone,
Liz, Brandon, and Maddie