Update

We went in for Maddie’s MRI today…it turned out to be a very long and restless night, and longer morning with the trip to the clinic and being put under for her MRI procedure.   We thought her episodes had subsided, but over the last two days they have continued to show up, especially when she is really tired.  We still do not know what is causing them to occur… as mentioned in the last post, one of her chemo drugs she has injected into her spinal fluid is known to cause brain damage and seizures, but we are hoping this is not a precursor or symptom of that.   She has her EEG test on Thursday and we will be doing forced sleep deprivation tomorrow night.  This is going to be extrememly strenuous on her, so please keep her in your thoughts and prayers. Thank you!

Love,

Liz, Brandon, and Maddie