It’s the night before surgery and I never wrote the long post I intended to explain the surgery and how we made the decision. Sorry! The surgery she is having is a corpus callosotomy. It is considered to be more palliative than curative, meaning we don’t expect it to cure her of epilepsy. If successful, it could reduce or change the seizures in a way that could give her a better quality of life. That is of course, our hope, and it is why we have decided on this course of action.
Her surgery is scheduled for 1:30 pm, which will be a bit of a challenge because it means she’ll be awake a long time in the morning without being allowed to eat. The positive is that we just got back home from a busy weekend at the beach with family. Maddie had a blast on the beach and in the ocean. It was a great way to stay busy so that we can just stop thinking about all the what-ifs.
The surgery will likely last around 5 hours from when they make us leave her to begin sedation. When the surgeon is done, she will go to the ICU for at least the first night and as long as it takes after that to get her stable. We expect to be in the hospital a minimum of 5 days.
We’d love your prayers, most specifically for a successful and complication-free surgery. We feel very confident in her surgeon, Dr Grant, but we know that any surgery, and especially brain surgery, is risky. There are many potential negative side effects of the surgery that can occur over the next few days and we will likely be very busy in the hospital helping control her pain and with therapies to try to help her with any weakness post-surgery. I will be updating here as frequently as I have time. I will definitely let y’all know once they have taken her back to begin the surgery as well as when we get to see her in the ICU.
Thanks in advance for your prayers and for caring about our little girl!
Love to everyone,
Liz, Brandon, and Maddie