We have been super busy with the Marine Corps Ball and Halloween. Things are still going well with the new med, Banzel. As of today Maddie has not had one of her big seizures in 15 days and I haven’t seen a drop since Saturday. There is definitely still seizure-y activity, but the improvement we are seeing is amazing. I think I had mostly given up hope that adding a new med could help her this much. Of course, I am still highly concerned that all the bad stuff could just creep back in as she becomes used to the medication. But we are hopeful. And extremely grateful for the good days we are having.
I wanted to share a pic of us dressed for the Ball. We had a great time.
We really enjoyed our stay in Myrtle Beach. The Friday following the Ball was Oct 29th, which also happens to be the 3 year anniversary of Maddie’s leukemia diagnosis. We celebrated the fact that she remains in remission and had a relaxing day at the beach.
We returned home from Myrtle Beach on Saturday and spent the next two days watching football and prepping for Halloween. Brandon even carved our pumpkin (can’t remember the last time we did that…..). Maddie wore a ladybug costume and looked absolutely precious. She is improving cognitively, but is still nowhere near understanding Halloween or the concept of trick-or-treating. So we just enjoyed taking pictures of her looking cute and walked up and down the street together. This was the first remotely normal Halloween we’ve had with Maddie (first: 2 days after cancer diagnosis, second: low counts from chemo, just out of hospital, third: just out of hospital on ketogenic diet so candy=forbidden). We just enjoyed the sweet simplicity of it. And got some great pics.
Liz, Brandon, and Maddie