So I feel guilty even writing this quick post because I have been so lackadaisical about posting lately. Frankly, that has been because things have not been good. And while I can often find ways to sugarcoat things or find the positives to share….. lately, seizure-wise, that has been difficult. It has also been tough to find positives developmentally. She has been stuck in a rut, and I have even been questioning the value of school because there has been no forward motion whatsoever.
I promise to go into more detail later about all that she has been going through lately (lots of med changes). But the reason for posting now is that we are seeing some significant seizure improvement for the first time in a very long time. She has recently started a drug called Banzel that I really did not have a ton of hope for. I know of one great outcome (seizure freedom!) from this drug (in an incredibly sweet little girl, Reagan) but otherwise the reviews have been pretty negative. Even our Neuro said he did not have much hope for it, but sadly, we have very few drugs left to try.
But we are having some very encouraging results already. And her pattern has been to have good results to new anti-epileptics early-on, and then eventually her brain finds a way to seize around them. So because I believe in the power of prayer, I am asking for yours now. Please pray that this drug, Banzel, is just what we need to finally rid our amazing little girl of the seizures which have stolen everything from her. She really needs this. Brain surgery is not an option and we have very few drugs left to try.
Thanks for caring for our little girl. And I will update in more detail soon.
Love to everyone,