Good news!

I just wanted to share that we finally got the news that the flow cytometry was normal! That is where they put the marrow sample through a meter that is really sensitive to count all the various types of cells. And the result was that they are no longer thinking she is relapsing. We actually have already gotten the results of her MLL gene test (it usually takes over a week), and this was normal too.

So this is fabulous news! We have no idea what caused the cells to look so abnormal Monday morning. I am not going to worry about that, and we just hope it will not happen again. We have had bone marrow aspirations to rule out relapse before, but each time it was because her bone marrow was not producing much and we were not sure why. This is the first time we have actually seen possible leukemic cells in her blood and had to rule out relapse. I will say I genuinely hope and pray we never have to go through this again. It was a very difficult few days for us.

We are already back from the beach. Unfortunately Maddie’s seizures have been ridiculously out of control the last week or two. She was not sleeping well at the beach, so we decided to come on back to Charlotte in hopes that getting her back to a normal routine might help.
Thanks so much to my uncle for sharing his fabulous house with us. Even with seizures every hour, it felt a little more relaxing in that beautiful setting with gorgeous views of the ocean and the ICWW from every room. We did not really resolve the housing dilemma yet, but we hope to soon.
Next Monday, we see the oncologist and draw blood counts again. Then on Thursday Maddie has her first session of “play therapy” with a therapist from Early Intervention. We are excited to see what she thinks of it. Then later Thursday afternoon, Maddie will go to see the Neuro-Opthalmologist to see what is going on with her eyes. We are not suspecting that she has trouble seeing, but she has some unusual things going on with her eyes that we want to stay on top of.

Thanks for checking in on us and for continuing to pray for our little girl.

Love to everyone,
Liz, Brandon, and Maddie

Advertisements

15 thoughts on “Good news!

  1. That’s fantastic news!! I’m so happy that Maddie finally has some uneventful news. 🙂

    Sorry to hear that her seizures are really awful right now. Praying they are controlable very soon.

  2. Thank goodness for a little bit of positive news!!! Thanks for sharing it with us. We continue to pray for all of you! God is good!
    Lori

  3. Thank God, that is amazing news. Good luck with the housing issues and enjoy your time together as a family. Let us know what we can do for you. Thoughts and prayers always.

    The Bertram’s

  4. I am so glad that you got great news from Maddie’s bone marrow. I know that must be such a relief. I pray that her seizures decrease and that next week goes well.

    Mary Bandy

  5. Hope this is just the beginning of more and more great news to come…(especially with the seizures)! You all will continue to be in our thoughts and prayers!

  6. Yeah Maddie! We hope the news just keeps getting better & better!
    Much love to you all,
    Carrie, Zack, Elizabeth & Mary Margaret

  7. I wanted to let you know that our family is praying for Maddie. I am glad you got some good news on the 15th and hope that Maddie’s seizures continue to improve. Thinking of you often- Owen Bandy’s Aunt Gretchen

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s