Update

We went in for Maddie’s MRI today…it turned out to be a very long and restless night, and longer morning with the trip to the clinic and being put under for her MRI procedure.   We thought her episodes had subsided, but over the last two days they have continued to show up, especially when she is really tired.  We still do not know what is causing them to occur… as mentioned in the last post, one of her chemo drugs she has injected into her spinal fluid is known to cause brain damage and seizures, but we are hoping this is not a precursor or symptom of that.   She has her EEG test on Thursday and we will be doing forced sleep deprivation tomorrow night.  This is going to be extrememly strenuous on her, so please keep her in your thoughts and prayers. Thank you!

Love,

Liz, Brandon, and Maddie

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4 thoughts on “Update

  1. Oh Liz,
    I am thinking of you guys. Huge hugs, for all of you, and especially Maddie. I can only imagine the extreme anxiety you are under right now as you search for answers while watching Maddie not only going through these seizures but the stress of each procedure on top of it all. Please know that so many are holding your family close in their thoughts and prayers. Praying that they resolve themselves soon and know that you will be in all of our thoughts, especially tonight and tomorrow.
    Hugs,
    Zanna and family

  2. Dear Maddie, we are praying for your swift recovery. Logan, Autumn, Amber and I send you all of our love and big hugs and kisses.

    Love, Shawn

  3. Dear Maddie, we are praying for your swift recovery. Logan, Autumn, Amber and I send you all of our love and big hugs and kisses.

    Love, Shawn xoxoxoxoxo

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