Before I start the description of our busy week, I need get together the t-shirt order for the walk. The shirts look like this, though I am having them made locally to save money. The t-shirts are available in both short sleeve and long sleeve. Short sleeve is $11 and long sleeve is $15. Sizes are adult S, M, L, XL, and XXL. We may offer youth sizes too if I get enough requests, but because the t-shirt people are being really nice and making the screens for free, I do not want to make them do another one unless we need alot of youth sizes. So email me your order at email@example.com with the subject T-shirt order. Please let me know short sleeve or long sleeve and sizes and quantity. If you are ordering multiple t-shirts for multiple family members, please list the name for each size so that we can label them accordingly to hand them out easily the day of the walk. If you are walking with us, I will bring your shirts to the walk, and you can pay me for them then. If you want to purchase a t-shirt but will not be there the day of the walk, I will be happy to mail them to you, but it will be an additional $3 for postage. You can mail me a check for the total and I will mail them out when I receive them. Our address is 8903 Longview Club Dr, Waxhaw, NC 28173. Please know that you do not have to wear the shirt to walk with us, but I did it so that we look like a team out there. I need t-shirt orders by Monday at the very latest, please email me immediately so you don’t forget!
We have had a busy week here. Sunday Maddie had developed some bleeding of the gums and had lots of bruising, so we knew her platelets were low. We started to go into the hopsital for a platelet transfusion, but decided to try to make it to Monday so that we could just go to the clinic instead of having to be admitted. When we woke up Monday morning, Maddie had been bleeding from her nose and gums quite a bit during the night, so we rushed in, knowing her platelets must be quite low. She also felt really bad and was acting vey unlike herself that morning, so we thought she might be anemic too. It turned out that her platelets were very, very low, just 2,000 (normal is over 150,000). So we got a platelet transfusion immediately. But her hemoglobin was still above 8, so we did not get a blood transfusion, and we left the clinic not quite sure why she was feeling so badly. We did find out that her ANC was just 3, which means that she was still extremely immunocompromised. That could be part of why she felt so bad.
By 6 Monday evening, Maddie had developed a fever. We packed our bags and headed back to the hospital knowing that we would be there at least 48 hours since her counts were so low. They will not release us from the hospital for at least 48 hours after coming in with a fever when her counts are low. Her counts have to show signs of rebounding also for them to release us.
By the time we arrived at the hospital, the fever was gone. They ran blood cultures to make sure she did not have a blood infection from her line in her port. That remained negative and she never spiked another fever. So Maddie got IV antibiotics for two nights and then we were released yesterday in the morning. Her ANC was still just 24 when we were released so she is still very immunocompromised (anything below ANC of 500) and we have a few more days of injections before we expect her counts to have fully rebounded.
We are happy to be home and she seems to be feeling alot better. I am still a little worried because her counts are a little different than they have been in the past. Please pray that her cancer remains gone and that she recovers from this round soon.
Love to everyone,
Liz, Brandon, and Maddie